Upcoming Events

#teamMikaere Charity Wine Tasting

Saturday 12 August, 3.15pm

Get Tickets

When: Saturday 12 August, 4pm
Where: Ranelagh Sailing Club, Putney, SW15 1LB

We’re so lucky to know and love a clever Irish gent who works in wine. He’s very kindly agreed to run a wine tasting evening for us, we’re so excited (also, if you know us you know how much we like wine!!).

So, fab wine tasting. £5 to book your spot and donate what you think it was worth on the day. There will also be a raffle hamper, and spot prizes. Looking forward to it!


#teamMikaere Garden Party

Sunday 17 September,1:30 – 5pm

When: Sunday 17 September, 1:30pm – 5pm
Where: Midway House, Toddington

Kai’s Grandparents + Great Aunts are throwing him a garden party! There will be all sorts of stalls (plants, art, fresh produce, cake, bric-a-brac), fun garden games, tombola and a hamper raffle!

Very much looking forward to it, it’s going to be fab!


Sam’s walking 75 miles for NKH!

Friday 22  – Sunday 24 September

When: Friday 22 – Sunday 24 of September
Where: The Thames Path


Sam, and a few people from BV will be walking 75 miles along the Thames Path across three days for #teamMikaere. We’re very very very proud, and plan to walk some of the miles with him and the team.

Sponsor link coming soon!

Can you fundraise for us?

Because NKH is so rare, every single pound has a profound effect on what research can be done. Bake Sales, Raffles, a Coffee morning, a poker game… the possibilities are endless. Please help us fundraise – we’re so very keen to find treatment for Kai!

If you’re keen, let us know. x

Past Events

Team Mikaere Shop Sales

Raised £188.50! 

Very impressed considering we only sell cards*. You guys are so generous, we’re so grateful for the support.

* Cards at the moment. Tshirt and cuffs coming soon, we hope!

– Shop Now

Blaze! with James Fountain and Fulham Brass Band

Raised £937! Woohoo!

The Fulham Brass Band kindly put on a charity concert, with proceeds going towards NKH Research. Woo hoo! Fulham Brass Band (conducted by John Ward) with special guest, James Fountain (principal trumpet of the Royal Philharmonic Orchestra) performed Phil Lawrence’s astonishing concerto ‘Blaze’, as well as music by Queen, Andrew Lloyd-Webber, Gavin Higgins, The Beatles, Richard Rodney Bennett and George Lloyd.

And there was cake. Oh. My. Days. The cake sale – it was DELICIOUS. Very grateful – thanks to everyone who came out!!

– Sunday 21 May 2016
Fulham Brass Band

Charity Cooking Class with The Avenue

Raised £758!

The Avenue Cookery School is one of our local businesses – they hosted an amazing amazing cookery class, taught by The Avenue’s Italian chef, Stefano! There was wine and we were shown step by step how to whip up little pockets of joy (aka, delicious ravioli). Our creations were topped with fresh rocket and a walnut beurre noisette, followed by a light lemony pudding made by the in-house chefs. Add the unlimited, free flowing wine and the knowledge that we were helping to save lives with our charitable donations – it was SUCH a great night! Thanks to the Avenue for hosting.

– Friday 23 June – 7pm to 10pm
The Avenue Cookery School

Dunstable Rock Choir Concert

Raised £698.20! Very very impressed!

There as an informal Dunstable Rock Choir Concert with a raffle for #teamMikaere and NKH Research. Kai’s Grandma sings in the Rock Choir, and we’re so pleased to have the support!

– Tues 21st March 2017
– www.rockchoir.com

Infinis Sponsorship

Sponsored £1000.00!

Kai’s Grandad Andy does some pretty fancy something-a-rathers at Infinis, and we were so grateful to hear they were willing to donate to the cause.

Thank you Infinis!
– www.infinis.com

Toddington Bar-be-Kai (BBQ)

Raised £1,130! So very generous x

A charity BBQ put on by the charming Penny + Tony Collins. There was a raffle, a cake auction with many things for sale (paintings + cards).  All proceeds went towards NKH Research – we’re so grateful for everyone who came. So generous!!

– Saturday 6th May 2017

HRW Rare Disease Day

Raised £253! Woo!

Healthcare Research Worldwide (HRW) held a raffle and a bake sale on Rare Disease Day – we’re so pleased they chose to support NKH and Joseph’s Goal!

– 28 Feb 2017
– www.hrwhealthcare.com

BV’s Matching Campaign

Raised £1947.45

Bazaarvoice very kindly ran a matching campaign for Joseph’s Goal, matching up to $750 that BV employee’s make. So kind!

It was in 2011, in a little BV office in Hammersmith Sam and Elly met for the first time. Fast forward a four years – past many pub visits + legendary BV celebrations – we now have a beautiful little baby boy.

– 06 Jan 2017
Just Giving Campaign
– www.bazaarvoice.com

Kai’s First Christmas

Raised £8000.56!

Instead of presents we asked for donations. We spent Christmas and New Years in intensive care at St Georges. It was a hard time. We’re so grateful for the love and support and donations that came rolling in over that Christmas period – you guys are amazing!

– 25 Dec 2017
– Just Giving Campaign

Buggyfit Charity Walk + Picnic

Raised £488.28!

Eliza, Buggyfit extraordinaire is ran a fundraiser buggyfit walk with a picnic, sponsored by Piccolo Baby Food + Sweaty Betty. We’ll did a few laps of Wandsworth Park + enjoyed a super cute picnic, with all the little ones enjoying plenty of finger food.

There was even a silent auction, that included prizes from Sweaty Betty, a Mummy MOT, Buggfit classes, a Piccolo goodie bag, Bootybarre classes, a massage, a Putt in the Park family pass, and a beautiful Burberry Silk Scarf.
Thanks to everyone that came out!

– Thursday 29 June 2017
– Picnic video

Birthday Bash in Toddington

Raised £1050!!!

Oh my days, what a wonderful a birthday bash for Jude, Marion, Margot, John and Dorothy! There was a super fun raffle, and we very much enjoyed the company. Kai even managed to get a few lovely cuddles in. It was lovely! Thanks to everyone who came, we were overwhelmed with your generosity!

– July 1st 2017
– Toddington

St Georges Coffee Morning

Raised £100!!!

The lovely St Georges held a coffee and cake morning for Kai  – we’re so grateful! St Georges is such a beautiful church, we’re so pleased to have the support.

– July 2017
– Toddington