Donate to NKH Research

Because NKH is terminal and treatment options are limited, we’re hopeful and determined to  support the leading research done with Dr Nick Greene at UCL/Great Ormond St Hospital. If you’re able, please donate. Because NKH is so rare, every pound has a direct tangible effect on the research that can be done.

Please Donate

Introducing Kai

Team Mikaere is for those following the journey of Sam, Elly and Mikaere – our beautiful baby boy with Nonketotic Hyperglycinemia. NKH is a rare, terminal metabolic disorder. Treatment options are limited, and every day is precious.

We’ve partnered with Joseph’s Goal to raise funds for the NKH Research done by Dr Nick Greene as part of UCL. He’s currently the world leader in NKH research, and we’re determined to give the research team the best shot at finding a cure for Kai.

#teamMikaere Shop

Support #teamMikaere with some flash gear. All profits are donated to NKH research.

Mikaere Foundation

Learn about Nonketotic Hyperglycinemia / Glycine Encephalopathy

Donate for Research

We’re trying to raise £100k – thats enough for a whole year of NKH Research.

Fundraise with us

Every pound we raise has a direct affect on the research we can do. Help us find a cure.


Elly used to blog about adventure. Now she blogs about her NKH day to day with Kai.


Sam’s blog something something a bee boo de dowoop. Boop boop.

We’ve Raised




of a £100,000.00 goal

We’ve partnered with Joseph’s Goal – UK’s only NKH charity. Joseph’s Goal funds research done by Dr Nick Greene with UCL/Great Ormond St Hospital.

Upcoming Events

Blaze! with James Fountain and Fulham Brass Band

Sun 21st May – 3pm – 5pm

Get Tickets

When: Sun 21st May – 15:00 – 17:00
Where: St Etheldreda with St Clement, Doneraile St SW6 6EL London

The Fulham Brass Band are kindly putting on a charity concert, with proceeds going towards NKH Research. Woo hoo!

Fulham Brass Band (conducted by John Ward) with special guest, James Fountain (principal trumpet of the Royal Philharmonic Orchestra) James will perform Phil Lawrence’s astonishing concerto ‘Blaze’ and the band will feature music by Queen, Andrew Lloyd-Webber, Gavin Higgins, The Beatles, Richard Rodney Bennett and George Lloyd.

Charity Cooking Class with The Avenue

Friday 23 June – 7pm – 10pm

Get Tickets

When: Friday 23 June – 7pm to 10pm
Where: 3 Enterprise Way, Wandsworth, London, SW18 1FZ

The Avenue Cookery School is one of our local businesses – they do amazing amazing cookery courses, where the focus is to understand food (and to eat it). The Avenue Cookery School has graciously agreed to provide a portion of each ticket to charity, and we’ll do a raffle on the night.

Spots limited to 24, we’ll keep you posted as to how to collect tickets! More information coming soon, watch this space.

Birthday Bash in Toddington

Saturday 1st July, 7pm

When: July 1st, 7pm
Where: Toddington

A birthday bash for Jude, Marion, Margo and Dorothy! There will be a raffle for #teamMikaere with proceeds going towards NKH Research. Excite!

Talk to Elly, Sam, Wendy or Jude for details! x

#teamMikaere Charity Wine Tasting

Watch this space!

When: TBA
Where: London, south of the river, probably west side somewhere

We’re so lucky to know and love a clever Irish gent who works in wine. He’s very kindly agreed to run a wine tasting evening for us, we’re so excited (also, if you know us you know how much we like wine!!).

Details coming soon, will keep you posted!


Can you fundraise for us?

Because NKH is so rare, every single pound has a profound effect on what research can be done. Bake Sales, Raffles, a Coffee morning, a poker game… the possibilities are endless. Please help us fundraise – we’re so very keen to find treatment for Kai!

If you’re keen, let us know. x

Past Events

HRW Rare Disease Day

Raised £253! Woo!

Healthcare Research Worldwide (HRW) held a raffle and a bake sale on Rare Disease Day – we’re so pleased they chose to support NKH and Joseph’s Goal!

– 28 Feb 2017

BV’s Matching Campaign

Raised £1947.45

Bazaarvoice very kindly ran a matching campaign for Joseph’s Goal, matching up to $750 that BV employee’s make. So kind!

It was in 2011, in a little BV office in Hammersmith Sam and Elly met for the first time. Fast forward a four years – past many pub visits + legendary BV celebrations – we now have a beautiful little baby boy.

– 06 Jan 2017
Just Giving Campaign

Kai’s First Christmas

Raised £8000.56!

Instead of presents we asked for donations. We spent Christmas and New Years in intensive care at St Georges. It was a hard time. We’re so grateful for the love and support and donations that came rolling in over that Christmas period – you guys are amazing!

– 25 Dec 2017
– Just Giving Campaign

Dunstable Rock Choir Concert

Raised £698.20! Very very impressed!

There as an informal Dunstable Rock Choir Concert with a raffle for #teamMikaere and NKH Research. Kai’s Grandma sings in the Rock Choir, and we’re so pleased to have the support!

– Tues 21st March 2017

Infinis Sponsorship

Sponsored £1000.00!

Kai’s Grandad Andy does some pretty fancy something-a-rathers at Infinis, and we were so grateful to hear they were willing to donate to the cause.

Thank you Infinis!

Toddington Bar-be-Kai (BBQ)

Raised £1,130! So very generous x

A charity BBQ put on by the charming Penny + Tony Collins. There was a raffle, a cake auction with many things for sale (paintings + cards).  All proceeds went towards NKH Research – we’re so grateful for everyone who came. So generous!!

– Saturday 6th May 2017

Team Mikaere Shop Sales

Raised £88.50! 

Very impressed considering we only sell cards*. You guys are so generous, we’re so grateful for the support.

* Cards at the moment. Tshirt and cuffs coming soon, we hope!

– Shop Now